If we are going to continue to make progress in all of our many activities to improve end-of-life care and expand options for all of us at life’s end, we need to engage in many more efforts. We need your help to do so.
End of Life Choices New York is the leading organization in New York working to improve end of life care and expand end of life options, to ensure a humane and peaceful death. The issues that EOLCNY works on, and the activities in which we engage, are about quality of health care, health care choices, and human rights, autonomy, justice and the relief of human suffering.We provide a variety of educational and outreach efforts to inform the public about end of life options. We are also raising awareness around New York State legislation on end of life options and patient rights. We aggressively pursue legal reforms to improve pain management and palliative care.
Hours Per Week: 15 hours per week
This especially affects people of color; whose communities face bias and in medical care. These communities often overlook end of life discussions and preparation and are therefore especially vulnerable. Hispanic and Black Americans are far less likely to have completed an advanced directive than their white peers. Discrimination takes many forms at the end of life, including poor pain management, inadequate communication between healthcare providers and families, and medical interventions without informed consent.
To address this, we are conducting a survey based on the experience of Black New Yorkers. Through the study, we seek to understand the end of life needs, views, and experiences of Black New Yorkers. The data collected will be used to create a report to inform future programs, policies, and resources to improve end of life care. We are seeking an intern to assist us with our outreach efforts to organizations throughout the state to facilitate study recruitment.
- Identifying potential collaborators and partners.
- Creating an outreach strategy to promote the survey to faith organizations, nonprofits, schools, professional groups, and community groups.
- Promoting the survey through social media