National Resources

ALS Association

www.alsa.org Provides education, advocacy and information about amyotrophic lateral sclerosis (Lou Gehrig’s disease). Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, there are resources to support you.

Alzheimer's Association

www.alz.org Provides resources for families and caregivers of those suffering from Alzheimer’ disease. OUR VISION: A World Without Alzheimer's Disease. Formed in 1980, the Alzheimer's Association is the leading voluntary health organization in Alzheimer's care, support and research.

Alzheimer's Foundation of America

www.alzfdn.org Founded in 2002 by a caregiver, the Alzheimer's Foundation of America provides education and support to individuals living with Alzheimer's disease and to their families and caregivers, and funds research toward improved treatments and a cure.

Caregiver Action Network (CAN)

caregiveraction.org Offers caregiving tips and on-line resources including a support network and resource guides. Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.

Caring.com

www.caring.com Caring.com is a leading online destination for caregivers seeking information and support as they care for aging parents, spouses, and other loved ones. We offer thousands of original articles, helpful tools, advice from more than 50 leading experts, a community of caregivers, and a comprehensive directory of caregiving services.

Caring Connections

www.caringinfo.org Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

Compassion & Choices

Compassion and Choices

www.compassionandchoices.org Compassion & Choices supports, educates and advocates. Across the nation, we work to ensure healthcare providers honor and enable patients’ decisions about their care. To make this vision a reality, Compassion & Choices works nationwide in state legislatures, Congress, courts, medical settings and communities

Compassion and Support

CompassionAndSupport.org

www.compassionandsupport.org This is a website developed and coordinated by The Community-Wide End of Life/Palliative Care Initiative, an initiative of the Rochester Health Care Forum. The goal of this initiative is to ensure that care provided to a person who is approaching death, in pain, or both, meet the person’s individual wishes and is of the highest quality, regardless of where this person lives or who is providing their care. The website has information about and example Medical Orders for Life-Sustaining Treatment (MOLST) forms.

DWD

Death With Dignity National Center

www.deathwithdignity.org Death with Dignity National Center is one of the leaders in the death with dignity movement, based on its development, implementation and defense of Oregon’s Death with Dignity Act..

End-of-Life Liberty Project

www.ucconsortium.org/portfolio-view/end-of-life-liberty-project ELLP brings cutting-edge cases throughout the United States to establish the right of the individual to choose a peaceful death through aid-in-dying. It is the leading advocacy organization using litigation as a tool to expand end-of-life liberty.

National Alliance for Caregiving

www.caregiving.org Provides caregiving tips and guides and an internet clearinghouse of 1,000 reviewed and rated resources for caregivers. The Alliance was created to: foster research, conduct policy analysis, develop national programs, increase public awareness of family caregiving issues, strengthen state and local caregiving coalitions, and represent the U.S. caregiving community throughout the world.

National Clearing House for Long-term Care

www.longtermcare.acl.gov The Administration for Community Living, an agency of the U.S. Department of Health and Human Services, brings together the efforts and achievements of the Administration on Aging, the Administration on Intellectual and Developmental Disabilities, and the HHS Office on Disability to serve as the Federal agency responsible for increasing access to community supports, while focusing attention and resources on the unique needs of older Americans and people with disabilities across the lifespan.

National Hospice and Palliative Care Organization

www.nhpco.org National Hospice & Palliative Care Organization (NHPCO) cares for terminally ill persons and their families, and is dedicated to making hospice an integral part of the US health care system.

Oregon Department of Human Services

www.oregon.govThe Oregon Department of Human Services’ webpage has all of the forms and annual reports on Oregon’s aid-in-dying law.

Pain Management Resources

www.vachss.comPain Management Resources provides a complete listing of groups from the American Alliance of Cancer Pain Initiatives to the Pain Research Institute.

World Federation of Right-to-Die Societies

www.worldrtd.net World Federation provides an international link for organizations working to secure or protect the rights of individuals to self-determination at the end of their lives.

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