National Resources

ALS ASSOCIATION

www.alsa.org Provides education, advocacy and information about amyotrophic lateral sclerosis (Lou Gehrig’s disease).

ALZHEIMER’S ASSOCIATION

www.alz.org Provides resources for families and caregivers of those suffering from Alzheimer’ disease.

ALZHEIMER’S FOUNDATION OF AMERICA

www.alzfdn.org Provides resources for families and caregivers of those suffering from Alzheimer’ disease.

CARING.COM

www.caring.com Provides information and support for people caring for parents or other loved ones.

CARING CONNECTIONS

www.caringinfo.org Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life, supported by a grant from The Robert Wood Johnson Foundation.

THE CENTER FOR FAMILY CAREGIVERS

www.familycaregivers.org Provides online support and educational materials to family caregivers.

COMPASSION & CHOICES

www.compassionandchoices.org Compassion & Choices is a national organization which helps patients and their loved ones face the end of life.

COMPASSION AND SUPPORT.ORG

www.compassionandsupport.org This is a website developed and coordinated by The Community-Wide End of Life/Palliative Care Initiative, an initiative of the Rochester Health Care Forum. The goal of this initiative is to ensure that care provided to a person who is approaching death, in pain, or both, meets the person’s individual wishes and is of the highest quality, regardless of where this person lives or who is providing their care. The website has information about and sample Medical Orders for Life Sustaining Treatment (MOLST) forms.

DEATH WITH DIGNITY NATIONAL CENTER

www.deathwithdignity.org Death with Dignity National Center is one of the leaders in the death with dignity movement, based on its development, implementation and defense of Oregon’s Death with Dignity Act..

NATIONAL CLEARINGHOUSE FOR LONG-TERM CARE

www.longtermcare.gov Provides information and resources on future long-term care needs.

NATIONAL ALLIANCE FOR CAREGIVING

www.caregiving.org

Provides caregiving tips and guides and an internet clearinghouse of 1,000 reviewed and rated resources for caregivers.

NATIONAL FAMILY CAREGIVERS ASSOCIATION

www.nfcacares.org Offers caregiving tips and on-line resources including a support network and resource guides.

NATIONAL HOSPICE & PALLIATIVE CARE ORGANIZATION

www.nhpco.org National Hospice & Palliative Care Organization (NHPCO) cares for terminally ill persons and their families, and is dedicated to making hospice an integral part of the US health care system.

OREGON DEPARTMENT OF HUMAN SERVICES

www.oregon.govThe Oregon Department of Human Services’ webpage has all of the forms and annual reports on Oregon’s aid-in-dying law.

PAIN MANAGEMENT RESOURCES

www.vachss.comPain Management Resources provides a complete listing of groups from the American Alliance of Cancer Pain Initiatives to the Pain Research Institute.

PALLIATIVE CARE POLICY CENTER

www.medicaring.org Palliative Care Policy Center (PCPC) offers expert support to hospitals, nursing homes, health systems, hospices, and other organizations that serve individuals nearing the end of life.

SENIOR ADVISOR. COM

www.senioradvisor.com Features reviews and advice on local senior living communities, providing information for people to make an informed decision.

WORLD FEDERATION OF RIGHT TO DIE SOCIETIES

www.worldrtd.net World Federation provides an international link for organizations working to secure or protect the rights of individuals to self-determination at the end of their lives.

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