Resources

In New York State

WEBSITES:

Caring Kind

CaringKind

www.caringkindnyc.org provides information and counseling to caregivers of Alzheimer's and dementia patients. With over 30 years of experience, we work directly with our community partners to develop the information, tools and training to support individuals and families affected by dementia.

Hospice and Palliative Care Association of New York State

Hospice and Palliative Care Association of New York State

www.hpcanys.org This statewide organization is dedicated to ensuring the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness.

Live With Care

Live With Care

www.livewithcare.org Live with Care.org, a project of the Westchester End-of-Life Coalition helps people prepare in advance of a serious health care problem, navigate the health care system and different care settings, understand care concepts and questions to ask, connect with local services and identify helpful online resources

Westchester End-of-Life Coalition

Westchester End-of-Life Coalition

www.westchesterendoflife.org The Westchester End-of-Life Coalition has a vision of a community where people at the end of life are comfortable, cared for and supported. The website has an excellent list of frequently asked questions and answers on hospice and palliative care, health care proxies and pain and symptom management.

FOR DOWNLOAD

Palliative Care in New York State

Palliative Care Booklet (pdf for download) Collaborative for Palliative Care In collaboration with its partners End of Life Choices New York and Finger Lakes Geriatric Center at the University of Rochester. This excellent booklet provides critically important information on palliative care.

Health Care Proxy Form for download

New York State Health Care Proxy Form

www.health.ny.gov/publications/1430.pdf The New York Health Care Proxy Law allows you to appoint someone you trust — for example, a family member or close friend – to make health care decisions for you if you lose the ability to make decisions yourself. .

Advanced Directive: Dementia

download the pdfThere are two purposes to completing an Advance Directive for Receiving Oral Food and Fluids In Dementia. The first is to document your wishes about when to stop efforts to provide assisted oral feeding because of an advanced dementia. The second is to ensure that your appointed health care agent is empowered to honor and implement those choices if you suffer from advanced dementia.

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