Resources

In New York State

WEBSITES:

Caring Kind

CaringKind

www.caringkindnyc.org provides information and counseling to caregivers of Alzheimer's and dementia patients. With over 30 years of experience, we work directly with our community partners to develop the information, tools and training to support individuals and families affected by dementia.

Hospice and Palliative Care Association of New York State

Hospice and Palliative Care Association of New York State

www.hpcanys.org This statewide organization is dedicated to ensuring the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness.

Live With Care

Live With Care

www.livewithcare.org Live with Care.org, a project of the Westchester End-of-Life Coalition helps people prepare in advance of a serious health care problem, navigate the health care system and different care settings, understand care concepts and questions to ask, connect with local services and identify helpful online resources

Westchester End-of-Life Coalition

Westchester End-of-Life Coalition

www.westchesterendoflife.org The Westchester End-of-Life Coalition has a vision of a community where people at the end of life are comfortable, cared for and supported. The website has an excellent list of frequently asked questions and answers on hospice and palliative care, health care proxies and pain and symptom management.

FOR DOWNLOAD

End of Life Choices New York - An Overview

One page (pdf for download) For over 18 years, End of Life Choices New York (EOLCNY) has worked to achieve better care and more choices for the dying through advocacy, education, and counseling.

Summary: PCIA & PCAA

2-page (pdf for download) New York Palliative Care Information Act and Palliative Care Access Act Summary, from End of Life Choices New York, and the Westchester End-of-Life Coalition

Summary: VSED

Four-page (pdf for download) An Overview Voluntarily Stopping Eating and Drinking (VSED) What you need to know about this legal option to hasten death.

Summary: Hospice

2-page (pdf for download) An Overview What is hospice? Who is on the hospice team? Where is hospice care provided? Who is eligible for hospice?

Palliative Care in New York State

Palliative Care Booklet (pdf for download) Collaborative for Palliative Care In collaboration with its partners End of Life Choices New York and Finger Lakes Geriatric Center at the University of Rochester.

Health Care Proxy Form for download

New York State Health Care Proxy Form

www.health.ny.gov/publications/1430.pdf The New York Health Care Proxy Law allows you to appoint someone you trust to make health care decisions for you if you lose the ability to make decisions yourself. .

Advanced Directive: Dementia

(PDF for download) Two purposes: 1) to document your wishes about when to stop efforts to provide assisted oral feeding because of an advanced dementia, and 2) to ensure that your appointed health care agent is empowered to honor and implement those choices.

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